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A portrait of self-reported health and distress in parents whose child died of cancer
(SAGE, 2020-09-20)
Grieving a child following cancer is a substantially difficult task. The objectives of this
research were: 1) to describe current quality of life (QoL), psychological distress and
symptoms of grief of bereaved parents, ...
Quality of life, treatment beliefs, and treatment satisfaction in children treated for primary immunodeficiency with SCIg
(Springer, 2017-06-08)
Despite the development of subcutaneous treatment, children and adolescents with primary immunodeficiency (PID) are vulnerable to a lower quality of life (QoL) than non-clinical participants. Comparisons have been offered ...
Identifying domains of quality of life in children with cancer undergoing palliative care : a qualitative study with professionals
(Cambridge University Press, 2017-01-31)
Objective:
The goal of pediatric palliative care (PPC) is to maintain the quality of life (QoL) of children whose lives are threatened. However, there are sparse scientific data on the domains of QoL in this particular ...
Getting ready for transition to adult care : tool validation and multi-informant strategy using the Transition Readiness Assessment Questionnaire in pediatrics
(Wiley, 2021-04-21)
Background
Transitioning from pediatric to adult healthcare can be challenging and lead to severe consequences if done suboptimally. The Transition Readiness Assessment Questionnaire (TRAQ) was developed to assess adolescent ...
Transition readiness assessment questionnaire : skill gaps and psychosocial predictors of transition readiness among adolescents and young adults with chronic medical conditions
(Wiley, 2023-08-03)
Background
Transferring from paediatric to adult care can be challenging. Adolescents and young adults (AYAs) with chronic health conditions need to develop a specific set of skills to ensure lifelong medical follow-up ...