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dc.contributor.authorAvard, Denise
dc.contributor.authorGrégoire, Gabrielle
dc.contributor.authorJean S., Michèle
dc.format.extent267693 bytes
dc.subjectPublic health
dc.subjectHuman genetics
dc.titleInvolving the Public in Public Health Genomics: A Review of Guidelines and Policy Statementsen
dc.contributor.affiliationUniversité de Montréal. Faculté de droit. Centre de recherche en droit publicfr
dc.contributor.affiliationUniversité de Montréal. Faculté de droitfr
dcterms.abstractPublic health genomics raises exciting possibilities for preventing or reducing the occurrence of both rare and common disease. However, this area of research raises challenging ethical, legal and social issues that must be addressed. One way of addressing these issues is through public involvement in the policy-making process. This GenEdit reviews how international guidelines and policy statements related to public health genomics address the issue of public involvement. Key areas of discussion are the values and goals justifying public involvement, the proposed activities to increase public involvement, who is / who represents "the public", and the projected outcomes of public involvement.en
dcterms.description[À l'origine dans / Was originally part of : CRDP - Droit, biotechnologie et rapport au milieu]fr
UdeM.VersionRioxxVersion acceptée / Accepted Manuscript

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