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Ethical dimensions in paediatric neurology: a look into the future
(2002)
Les professionnels de la santé et les familles pour qui des enfants qui participent à la recherche en génétique ou qui nécessitent des services génétiques spécialisés, y compris, le dépistage génétique, seront confrontés ...
Newborn screening for sickle-cell disease : socio-ethical implications
(Ashgate, Aldershot, 2006)
INHERIT BRCAs Partnering in Oncogenetic Research – The INHERIT BRCAs Experience: Opportunities and Challenges
(Ashgate Publishing Limited, 2005)
Newborn Screening, Banking, and Consent
(GenEdit, 2004)
Whither Pediatric Research and Predisposition Genetic Testing?
(GenEdit, 2006)
Research in which children undergo genetic testing for predisposition to adult-onset diseases or disorders can lead to a better understanding of these conditions. It can possibly also help encourage early detection and the ...
Consent in Pharmacogenomic research
(GenEdit, 2007)
This article analyzes the emerging ethical and legal requirements for informed consent in pharmacogenomic research. It reviews how policies at the international, regional and national levels have responded to the ethical ...
Involving the Public in Public Health Genomics: A Review of Guidelines and Policy Statements
(GenEdit, 2008)
Public health genomics raises exciting possibilities for preventing or reducing the occurrence of both rare and common disease. However, this area of research raises challenging ethical, legal and social issues that must ...